Pierce Library invites you to join us in celebrating Disability Pride Month!
We commemorate Disability Pride Month every July in the United States to celebrate the disability community's history and accomplishments, and to help combat the social stigma, ableism, and barriers to access that affect people living with disabilities in our society. Disability Pride Month is observed in July to commemorate the passage of the Americans with Disabilities Act (ADA) on July 26th 1990, a landmark disability rights achievement that expanded equitable access to public spaces and prohibited discrimination based on disability. Approximately 1 in 4 adults in the U.S. live with some type of disability, making people with disabilities the largest and most diverse minority in the United States.
This month is a time to honor the decades of activism and civil disobedience that made the ADA's passage possible, uplift voices within the disability community, and work towards alternate futures where everyone can access the care and resources they need to live a full life. Learn more about the Disability Rights Movement.
Unmasking Autism: Discovering the New Faces of Neurodiversity by
For every visibly Autistic person you meet, there are countless "masked" Autistic people who pass as neurotypical. Masking is a common coping mechanism in which Autistic people hide their identifiably Autistic traits in order to fit in with societal norms, adopting a superficial personality at the expense of their mental health. This can include suppressing harmless stims, papering over communication challenges by presenting as unassuming and mild-mannered, and forcing themselves into situations that cause severe anxiety, all so they aren't seen as needy or "odd." In Unmasking Autism, Dr. Devon Price shares his personal experience with masking and blends history, social science research, prescriptions, and personal profiles to tell a story of neurodivergence that has thus far been dominated by those on the outside looking in. For Dr. Price and many others, Autism is a deep source of uniqueness and beauty. Unfortunately, living in a neurotypical world means it can also be a source of incredible alienation and pain. Most masked Autistic individuals struggle for decades before discovering who they truly are. They are also more likely to be marginalized in terms of race, gender, sexual orientation, class, and other factors, which contributes to their suffering and invisibility.
Black Disability Politics by
In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women's Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.
We're Not Broken: Changing the Autism Conversation by
"This book is a message from autistic people to their parents, friends, teachers, coworkers and doctors showing what life is like on the spectrum. It's also my love letter to autistic people. For too long, we have been forced to navigate a world where all the road signs are written in another language." With a reporter's eye and an insider's perspective, Eric Garcia shows what it's like to be autistic across America. Garcia began writing about autism because he was frustrated by the media's coverage of it; the myths that the disorder is caused by vaccines, the narrow portrayals of autistic people as white men working in Silicon Valley. His own life as an autistic person didn't look anything like that. He is Latino, a graduate of the University of North Carolina, and works as a journalist covering politics in Washington D.C. Garcia realized he needed to put into writing what so many autistic people have been saying for years; autism is a part of their identity, they don't need to be fixed. In We're Not Broken, Garcia uses his own life as a springboard to discuss the social and policy gaps that exist in supporting those on the spectrum.
Crip Kinship: The Disability Justice & Art Activism of Sins Invalid by
In recent years, disability activism has come into its own as a vital and necessary means to acknowledge the power and resilience of the disabled community, and to call out ableist culture wherever it appears. Crip Kinship explores the art-activism of Sins Invalid, a San Francisco Bay Area-based performance project, and its radical imaginings of what disabled, queer, trans, and gender nonconforming bodyminds of color can do: how they can rewrite oppression, and how they can gift us with transformational lessons for our collective survival. Grounded in their Disability Justice framework, Crip Kinship investigates the revolutionary survival teachings that disabled, queer of color community offers to all our bodyminds. From their focus on crip beauty and sexuality to manifesting digital kinship networks and crip-centric liberated zones, Sins Invalid empowers and moves us toward generating our collective liberation from our bodyminds outward.
Being Seen: One Deafblind Woman's Fight to End Ableism by
A deafblind writer and professor explores how the misrepresentation of disability in books, movies, and TV harms both the disabled community and everyone else. As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness--much to the confusion of the world around her. While she cannot see well enough to operate without a guide dog or cane, she can see enough to know when someone is reacting to the visible signs of her blindness and can hear when they're whispering behind her back. And she certainly knows how wrong our one-size-fits-all definitions of disability can be. As a media studies professor, she's also seen the full range of blind and deaf portrayals on film, and here she deconstructs their impact, following common tropes through horror, romance, and everything in between. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.
Disability Visibility: First-Person Stories from the Twenty-First Century by
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent-but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people,just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond- this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
The Power of Disability: 10 Lessons for Surviving, Thriving, and Changing the World by
This book reveals that people with disabilities are the invisible force that has shaped history. They have been instrumental in the growth of freedom and birth of democracy. They have produced heavenly music and exquisite works of art. They have unveiled the scientific secrets of the universe. They are among our most popular comedians, poets, and storytellers. And at 1.2 billion, they are also the largest minority group in the world. Al Etmanski offers ten lessons we can all learn from people with disabilities, illustrated with short, funny, inspiring, and thought-provoking stories of one hundred individuals from twenty countries. The time has come to recognize people with disabilities for who they really are: authoritative sources on creativity, love, sexuality, resistance, dealing with adversity, and living a good life.
Disfigured: On Fairy Tales, Disability, and Making Space by
Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? If every disabled character is mocked and mistreated, how does the Beast ever imagine a happily-ever-after? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.
Uncanny Bodies: Superhero Comics and Disability by
Superhero comics reckon with issues of corporeal control. And while they commonly deal in characters of exceptional or superhuman ability, they have also shown an increasing attention and sensitivity to diverse forms of disability, both physical and cognitive. The essays in this collection reveal how the superhero genre, in fusing fantasy with realism, provides a visual forum for engaging with issues of disability and intersectional identity (race, ethnicity, class, gender, and sexuality) and helps to imagine different ways of being in the world. Working from the premise that the theoretical mode of the uncanny, with its interest in what is simultaneously known and unknown, ordinary and extraordinary, opens new ways to think about categories and markers of identity, Uncanny Bodiesexplores how continuums of ability in superhero comics can reflect, resist, or reevaluate broader cultural conceptions about disability. The chapters focus on lesser-known characters--such as Echo, Omega the Unknown, and the Silver Scorpion--as well as the famous Barbara Gordon and the protagonist of the acclaimed series Hawkeye, whose superheroic uncanniness provides a counterpoint to constructs of normalcy. Several essays explore how superhero comics can provide a vocabulary and discourse for conceptualizing disability more broadly. Thoughtful and challenging, this eye-opening examination of superhero comics breaks new ground in disability studies and scholarship in popular culture. In addition to the editors, the contributors are Sarah Bowden, Charlie Christie, Sarah Gibbons, Andrew Godfrey-Meers, Marit Hanson, Charles Hatfield, Naja Later, Lauren O'Connor, Daniel J. O'Rourke, Daniel Pinti, Lauranne Poharec, and Deleasa Randall-Griffiths.
Care Work: Dreaming Disability Justice by
Leah Piepzna-Samarasinha is a poet and essayist whose most recent book, the memoir Dirty River, was a finalist for a Lambda Literary Award and the Publishing Triangle's Judy Grahn Award for Lesbian Nonfiction. She is also a long-time member of the disability justice movement, which advocates for the rights of the disabled. In her latest book of essays, Leah writes passionately and personally about disability justice, on subject such as the creation of care webs, collective access, and radically accessible spaces. She also imparts her own survivor skills and wisdom based on her years of activist work, empowering the disabled--in particular, those in queer and/or BIPOC communities--and granting them the necessary tools by which they can imagine a future where no one is left behind. Presently, disability justice and emotional/care work are buzzwords on many people's lips, and the disabled and sick are discovering new ways to build power within themselves and each other; at the same time, those powers remain at risk in this fragile political climate in which we find ourselves. Powerful and passionate, Care Work is a crucial and necessary call to arms.
No Right to Be Idle: The Invention of Disability, 1840s–1930s by
During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.
We've Got This: Essays by Disabled Parents by
The first major anthology by parents with disabilities. How does a father who is blind take his child to the park? How is a mother with dwarfism treated when she walks her child down the street? How do Deaf parents know when their baby cries in the night? When writer and musician Eliza Hull was pregnant with her first child, like most parents-to-be she was a mix of excited and nervous. But as a person with a disability, there were added complexities. She wondered: Will the pregnancy be too hard? Will people judge me? Will I cope with the demands of parenting? More than 15 percent of people worldwide live with a disability, and many of them are also parents. And yet their stories are rarely shared, their experiences almost never reflected in parenting literature. In We've Got This, parents around the world who identify as Deaf, disabled, or chronically ill discuss the highs and lows of their parenting journeys and reveal that the greatest obstacles lie in other people's attitudes. The result is a moving, revelatory, and empowering anthology that tackles ableism head-on. As Rebekah Taussig writes, 'Parenthood can tangle with grief and loss. Disability can include joy and abundance. And goddammit -- disabled parents exist.'
Year of the Tiger: An Activist's Life by
In Chinese culture, the tiger is deeply revered for its confidence, passion, ambition, and ferocity. That same fighting spirit resides in Alice Wong. Drawing on a collection of original essays, previously published work, conversations, graphics, photos, commissioned art by disabled and Asian American artists, and more, Alice uses her unique talent to share an impressionistic scrapbook of her life as an Asian American disabled activist, community organizer, media maker, and dreamer. From her love of food and pop culture to her unwavering commitment to dismantling systemic ableism, Alice shares her thoughts on creativity, access, power, care, the pandemic, mortality, and the future. As a self-described disabled oracle, Alice traces her origins, tells her story, and creates a space for disabled people to be in conversation with one another and the world. Filled with incisive wit, joy, and rage, Wong's Year of the Tiger will galvanize readers with big cat energy.
Deaf Utopia: A Memoir -- And a Love Letter to a Way of Life by
A heartfelt and inspiring memoir and celebration of Deaf culture by Nyle DiMarco, actor, producer, two-time reality show winner, and cultural icon of the international Deaf community. Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle "failed" his first test--a hearing test--to the joy and excitement of his parents. In this engrossing memoir, Nyle shares stories, both heartbreaking and humorous, of what it means to navigate a world built for hearing people. From growing up in a rough-and-tumble childhood in Queens with his big and loving Italian-American family to where he is now, Nyle has always been driven to explore beyond the boundaries given him. Deaf Utopia is more than a memoir, it is a cultural anthem--a proud and defiant song of Deaf culture and a love letter to American Sign Language, Nyle's primary language. Through his stories and those of his Deaf brothers, parents, and grandparents, Nyle opens many windows into the Deaf experience. Deaf Utopia is intimate, suspenseful, hilarious, eye-opening, and smart--both a memoir and a celebration of what makes Deaf culture unique and beautiful.
Ill Feelings by
An intrepid, galvanizing meditation on illness, disability, feminism, and what it means to be alive. In 1995 Alice’s mother collapsed with pneumonia. She never fully recovered and was eventually diagnosed with ME, or Chronic Fatigue Syndrome. Then Alice got ill. Their symptoms mirrored their mother’s and appeared to have no physical cause; they received the same diagnosis a few years later. Ill Feelings blends memoir, medical history, biography and literary nonfiction to uncover both of their case histories, and branches out into the records of ill health that women have written about in diaries and letters. Their cast of characters includes Virginia Woolf and Alice James, the poets Elizabeth Barrett Browning and Emily Dickinson, John Ruskin’s lost love Rose la Touche, the artist Louise Bourgeois and the nurse Florence Nightingale. Suffused with a generative, transcendent rage, Alice Hattrick’s genre-bending debut is a moving and defiant exploration of life with a medically unexplained illness.
Easy Beauty: A Memoir by
"I am in a bar in Brooklyn, listening to two men, my friends, discuss whether my life is worth living." So begins Chloé Cooper Jones's bold, revealing account of moving through the world in a body that looks different than most. Jones learned early on to factor "pain calculations" into every plan, every situation. Born with a rare congenital condition called sacral agenesis which affects both her stature and gait, her pain is physical. But there is also the pain of being judged and pitied for her appearance, of being dismissed as "less than." The way she has been seen--or not seen--has informed her lens on the world her entire life. She resisted this reality by excelling academically and retreating to "the neutral room in her mind" until it passed. But after unexpectedly becoming a mother (in violation of unspoken social taboos about the disabled body), something in her shifts, and Jones sets off on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself. From the bars and domestic spaces of her life in Brooklyn to sculpture gardens in Rome; from film festivals in Utah to a Beyoncé concert in Milan; from a tennis tournament in California to the Killing Fields of Phnom Penh, Jones weaves memory, observation, experience, and aesthetic philosophy to probe the myths underlying our standards of beauty and desirability and interrogates her own complicity in upholding those myths.
Continuum by
"What constructs in your life must you unlearn to support inclusivity and respect for all?" This is a question that artist, actor, and activist Chella Man wrestles with in this powerful and honest essay. A story of coping and resilience, Chella journeys through his experiences as a deaf, transgender, genderqueer, Jewish person of color, and shows us that identity lies on a continuum -- a beautiful, messy, and ever-evolving road of exploration.
Being Heumann: An Unrepentant Memoir of a Disability Rights Activist by
One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn't built for all of us and of one woman's activism--from the streets of Brooklyn and San Francisco to inside the halls of Washington--Being Heumann recounts Judy Heumann's lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy's struggle for equality began early in life. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples' rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann's memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Sitting Pretty: The View From my Ordinary Resilient Disabled Body by
A memoir-in-essays from disability advocate and creator of the Instagram account @sitting_pretty Rebekah Taussig, processing a lifetime of memories to paint a beautiful, nuanced portrait of a body that looks and moves differently than most. Growing up as a paralyzed girl during the 90s and early 2000s, Rebekah Taussig only saw disability depicted as something monstrous (The Hunchback of Notre Dame), inspirational (Helen Keller), or angelic (Forrest Gump). None of this felt right; and as she got older, she longed for more stories that allowed disability to be complex and ordinary, uncomfortable and fine, painful and fulfilling. Writing about the rhythms and textures of what it means to live in a body that doesn't fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. By exploring this truth in poignant and lyrical essays, Taussig illustrates the need for more stories and more voices to understand the diversity of humanity. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write an entirely different story.
Golem Girl: A Memoir by
What do we sacrifice in the pursuit of normalcy? And what becomes possible when we embrace monstrosity? Can we envision a world that sees impossible creatures? In 1958, amongst the children born with spina bifida is Riva Lehrer. At the time, most such children are not expected to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture. Their work is daring, edgy, funny, and dark--it rejects tropes that define disabled people as pathetic, frightening, or worthless. They insist that disability is an opportunity for creativity and resistance. Emboldened, Riva asks if she can paint their portraits--inventing an intimate and collaborative process that will transform the way she sees herself, others, and the world. Each portrait story begins to transform the myths she's been told her whole life about her body, her sexuality, and other measures of normal. Written with the vivid, cinematic prose of a visual artist, and the love and playfulness that defines all of Riva's work, Golem Girl is an extraordinary story of tenacity and creativity.
Broken Places and Outer Spaces: Finding Creativity in the Unexpected by
A powerful journey from star athlete to sudden paralysis to creative awakening, award-winning science fiction writer Nnedi Okorafor shows that what we think are our limitations have the potential to become our greatest strengths. Nnedi Okorafor was never supposed to be paralyzed. A college track star and budding entomologist, Nnedi's lifelong battle with scoliosis was just a bump in her plan--something a simple operation would easily correct. But when Nnedi wakes from the surgery to find she can't move her legs, her entire sense of self begins to waver. Confined to a hospital bed for months, unusual things begin to happen. Psychedelic bugs crawl her hospital walls; strange dreams visit her nightly. Nnedi begins to put these experiences into writing, conjuring up strange, fantastical stories. What Nnedi discovers during her confinement would prove to be the key to her life as a successful science fiction author: In science fiction, when something breaks, something greater often emerges from the cracks. In Broken Places & Outer Spaces, Nnedi takes the reader on a journey from her hospital bed deep into her memories, from her painful first experiences with racism as a child in Chicago to her powerful visits to her parents' hometown in Nigeria. From Frida Kahlo to Mary Shelly, she examines great artists and writers who have pushed through their limitations, using hardship to fuel their work. Through these compelling stories and her own, Nnedi reveals a universal truth: What we perceive as limitations have the potential to become our greatest strengths--far greater than when we were unbroken. A guidebook for anyone eager to understand how their limitations might actually be used as a creative springboard, Broken Places & Outer Spaces is an inspiring look at how to open up new windows in your mind.
A Certain Loneliness: A Memoir by
After contracting polio as a child, Sandra Gail Lambert progressed from braces and crutches to a manual wheelchair to a power wheelchair--but loneliness has remained a constant, from the wild claustrophobia of a child in body casts to just yesterday, trapped at home, gasping from pain. A Certain Loneliness is a meditative and engaging memoir-in-essays that explores the intersection of disability, queerness, and female desire with frankness and humor. Lambert presents the adventures of flourishing within a world of uncertain tomorrows: kayaking alone through swamps with alligators; negotiating planes, trains, and ski lifts; scoring free drugs from dangerous men; getting trapped in a too-deep snow drift without crutches. A Certain Loneliness is literature of the body, palpable and present, in which Lambert's lifelong struggle with isolation and independence--complete with tiresome frustrations, slapstick moments, and grand triumphs--are wound up in the long history of humanity's relationship to the natural world.
Cyborg Detective: Poems by
In her third collection of poems, Jillian Weise delivers a reckoning to the ableism of the Western Canon. These poems investigate and challenge the ways that nondisabled writers have appropriated disabled bodies, from calling out William Carlos Williams to biohacking Raymond Carver's 'Cathedral' to chronicling the ongoing headlines of violence against disabled women. Part invective, part love poem, Cyborg Detective holds a magnifying glass to the marginalization and fetishization of disabled people while claiming space and pride for the people who already use technology and cybernetic implants every day.
Listening Through the Bone: Collected Poems by
I don't write "with the ear" as most poets do, but with the eye. As Deaf people are apt to do, we become attuned to our world through tactile means, listening through the bone for vibrations, sensing shifts in air currents, recognizing wafting odors, observing fluctuations and reflections of light and movements in the water. In Listening through the Bone, Willy Conley bears witness to life's moments and renders them into poems that are at once irreverent and tender. His poetry examines life cycles, the natural world, and his experiences as a Deaf individual.
Bodymap: Poems by
In Bodymap, Lambda Award-winner Leah Lakshmi Piepzna-Samarasinha sings a queer disabled femme-of-colour love song filled with hard femme poetics and disability justice. In this volume, Leah Lakshmi maps hard and vulnerable terrains of queer desire, survivorhood, transformative love, sick and disabled queer genius and all the homes we claim and deserve.
The Deaf Heart: A Novel by
Told through a series of quirky, irreverent short stories and letters home during the early 1980s, The Deaf Heart chronicles a year in the life of Dempsey "Max" McCall, a Deaf biomedical photography resident at a teaching hospital on the island of Galveston, Texas. Max strives to become certified as a Registered Biological Photographer while straddling the deaf and hearing worlds. He befriends Reynaldo, an impoverished Deaf Mexican, and they go on a number of unusual escapades around the island. At the hospital, Max has to contend with hearing doctors, nurses, scientists, and teachers. While struggling through the rigors of his residency and running into bad luck in meeting women, Max discovers an ally in his hearing housemate Zag, a fellow resident who is also vying for certification. Toward the end of his residency, Max meets Maddy, a Deaf woman who helps bring balance to his life. Author Willy Conley's stories, some humorous, some poignant, reveal Max's struggles and triumphs as he attempts to succeed in the hearing world while at the same time navigating the multicultural and linguistic diversity within the Deaf world.
Veil and Burn: Poems by
Concerned with physical experience, pain, and disability, Veil and Burn illuminates an intense desire to feel through the Other, embrace it, become it, and in the transformation, to understand the suffering body. In poems about animals, artifacts, and monsters, Lambeth displays a fascination for all bodies while exploring their pain, common fate, alienation, and abilities. Hovering between poem and prose fragment, between the self and fellow creatures, Laurie Clements Lambeth celebrates physical sensation, imbuing it with lyric shape, however broken, however imprisoned the shape may be.
One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent-but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people,just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson's account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond- this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.
The students at the River Valley School for the Deaf just want to hook up, pass their history finals, and have politicians, doctors, and their parents stop telling them what to do with their bodies. This revelatory novel plunges readers into the halls of a residential school for the deaf, where they'll meet Charlie, a rebellious transfer student who's never met another deaf person before; Austin, the school's golden boy, whose world is rocked when his baby sister is born hearing; and February, the hearing headmistress, a CODA (child of deaf adult(s)) who is fighting to keep her school open and her marriage intact, but might not be able to do both. As a series of crises both personal and political threaten to unravel each of them, Charlie, Austin, and February find their lives inextricable from one another--and changed forever. This is a story of sign language and lip-reading, disability and civil rights, isolation and injustice, first love and loss, and, above all, great persistence, daring, and joy. Absorbing and assured, idiosyncratic and relatable, this is an unforgettable journey into the Deaf community and a universal celebration of human connection.
The first book to cover the entirety of disability history, from pre-1492 to the present. Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it's a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn't to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience-from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing-at times horrific-narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation's past- from a stifling master narrative to a shared history that encompasses us all.
What is autism? A lifelong disability, or a naturally occurring form of cognitive difference akin to certain forms of genius? In truth, it is all of these things and more--and the future of our society depends on our understanding it. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has soared in recent years. Going back to the earliest days of autism research and chronicling the brave and lonely journey of autistic people and their families through the decades, Silberman provides long-sought solutions to the autism puzzle, while mapping out a path for our society toward a more humane world in which people with learning differences and those who love them have access to the resources they need to live happier, healthier, more secure, and more meaningful lives. Along the way, he reveals the untold story of Hans Asperger, the father of Asperger's syndrome, whose "little professors" were targeted by the darkest social-engineering experiment in human history; exposes the covert campaign by child psychiatrist Leo Kanner to suppress knowledge of the autism spectrum for fifty years; and casts light on the growing movement of "neurodiversity" activists seeking respect, support, technological innovation, accommodations in the workplace and in education, and the right to self-determination for those with cognitive differences.
Sam and Sadie--two college friends, often in love, but never lovers--become creative partners in a dazzling and intricately imagined world of video game design, where success brings them fame, joy, tragedy, duplicity, and, ultimately, a kind of immortality. It is a love story, but not one you have read before. On a bitter-cold day, in the December of his junior year at Harvard, Sam Masur exits a subway car and sees, amid the hordes of people waiting on the platform, Sadie Green. He calls her name. For a moment, she pretends she hasn't heard him, but then, she turns, and a game begins: a legendary collaboration that will launch them to stardom. These friends, intimates since childhood, borrow money, beg favors, and, before even graduating college, they have created their first blockbuster, Ichigo. Overnight, the world is theirs. Not even twenty-five years old, Sam and Sadie are brilliant, successful, and rich, but these qualities won't protect them from their own creative ambitions or the betrayals of their hearts. Spanning thirty years, from Cambridge, Massachusetts, to Venice Beach, California, and lands in between and far beyond, Gabrielle Zevin's Tomorrow, and Tomorrow, and Tomorrow examines the multifarious nature of identity, disability, failure, the redemptive possibilities in play, and above all, our need to connect: to be loved and to love.
The Americans with Disabilities Act (ADA) is the widest-ranging and most comprehensive piece of civil rights legislation ever passed in the United States, and it has become the model for disability-based laws around the world. Yet the surprising story behind how the bill came to be is little known. In this riveting account, acclaimed disability scholar Lennard J. Davis delivers the first behind-the-scenes and on-the-ground narrative of how a band of leftist Berkeley hippies managed to make an alliance with upper-crust, conservative Republicans to bring about a truly bipartisan bill. Based on extensive interviews with all the major players involved including legislators and activists, Davis recreates the dramatic tension of a story that is anything but a dry account of bills and speeches. Rather, it's filled with one indefatigable character after another, culminating in explosive moments when the hidden army of the disability community stages scenes like the iconic "Capitol Crawl" or an event some describe as "deaf Selma," when students stormed Gallaudet University demanding a "Deaf President Now!" From inside the offices of newly formed disability groups to secret breakfast meetings surreptitiously held outside the White House grounds, here we meet countless unsung characters, including political heavyweights and disability advocates on the front lines. "You want to fight?" an angered Ted Kennedy would shout in an upstairs room at the Capitol while negotiating the final details of the ADA. Congressman Tony Coelho, whose parents once thought him to be possessed by the devil because of his epilepsy, later became the bill's primary sponsor. There's Justin Dart, adorned in disability power buttons and his signature cowboy hat, who took to the road canvassing fifty states, and people like Patrisha Wright, also known as "The General," Arlene Myerson or "the brains," "architect" Bob Funk, and visionary Mary Lou Breslin, who left the hippie highlands of the West to pursue equal rights in the marble halls of DC. Published for the twenty-fifth anniversary of the ADA, Enabling Acts promises to ignite readers in a discussion of disability rights by documenting this "eyes on the prize" moment for tens of millions of American citizens.
Disability Incarcerated gathers thirteen contributions from an impressive array of fields. Taken together, these essays assert that a complex understanding of disability is crucial to an understanding of incarceration, and that we must expand what has come to be called 'incarceration.' The chapters in this book examine a host of sites, such as prisons, institutions for people with developmental disabilities, psychiatric hospitals, treatment centers, special education, detention centers, and group homes; explore why various sites should be understood as incarceration; and discuss the causes and effects of these sites historically and currently. This volume includes a preface by Professor Angela Y. Davis and an afterword by Professor Robert McRuer.
Thirty years ago, Susan Sontag famously wrote, "Everyone who is born holds dual citizenship, in the kingdom of the well and the kingdom of the sick . . . Sooner or later each of us is obliged, at least for a spell, to identify ourselves as citizens of that other place." More than 133 million Americans now live with chronic illness, accounting for nearly three quarters of all health care dollars and untold pain, disability, and heartbreak. Patients with diseases as varied as HIV, cancer, or type 2 diabetes have been stigmatized, accused of causing their preventable illnesses through their lifestyle choices. People with irritable bowel syndrome and female patients with chronic fatigue syndrome have been told their symptoms were due to anxiety; and millions of people with chronic pain have faced skepticism from physicians and the public alike. What The Noonday Demon did for people suffering from depression, Laurie Edwards does for those who are chronically ill, championing their cause and giving voice to their lament.
Deaf people are usually regarded by the hearing world as having a lack, as missing a sense. Yet a definition of deaf people based on hearing loss obscures a wealth of ways in which societies have benefited from the significant contributions of deaf people. In this bold intervention into ongoing debates about disability and what it means to be human, experts from a variety of disciplines--neuroscience, linguistics, bioethics, history, cultural studies, education, public policy, art, and architecture--advance the concept of Deaf Gain and challenge assumptions about what is normal. Through their in-depth articulation of Deaf Gain, the editors and authors of this pathbreaking volume approach deafness as a distinct way of being in the world, one which opens up perceptions, perspectives, and insights that are less common to the majority of hearing persons. For example, deaf individuals tend to have unique capabilities in spatial and facial recognition, peripheral processing, and the detection of images. And users of sign language, which neuroscientists have shown to be biologically equivalent to speech, contribute toward a robust range of creative expression and understanding. By framing deafness in terms of its intellectual, creative, and cultural benefits, Deaf Gain recognizes physical and cognitive difference as a vital aspect of human diversity.
Born with cerebral palsy, Amy can't walk without a walker, talk without a voice box, or even fully control her facial expressions. Plagued by obsessive-compulsive disorder, Matthew is consumed with repeated thoughts, neurotic rituals, and crippling fear. Both in desperate need of someone to help them reach out to the world, Amy and Matthew are more alike than either ever realized. When Amy decides to hire student aides to help her in her senior year at Coral Hills High School, these two teens are thrust into each other's lives. As they begin to spend time with each other, what started as a blossoming friendship eventually grows into something neither expected.
In July 2012, the 8th Deaf History International (DHI) Conference featured 27 presentations from members of Deaf communities around the world who related their own autobiographies as well as the biographies of historical Deaf individuals. The presenters came from 12 different countries, but their stories traverse many other locales. Thus, they created a transnational phenomenon of widespread interest in the collection, documentation, and dissemination of Deaf history by and for members of the deaf community. Telling Deaf Lives: Agents of Change brings together the best of the DHI Conference offerings in this volume. Due to the dearth of formal research on deaf people, Deaf community historians drove the preservation of the stories in this collection.
We understand stuff. We just learn it slow. And most of what we understand is that people what ain't Speddies think we too stupid to get out our own way. And that makes me mad. Quincy and Biddy are both graduates of their high school's special ed program, but they couldn't be more different: suspicious Quincy faces the world with her fists up, while gentle Biddy is frightened to step outside her front door. When they're thrown together as roommates in their first "real world" apartment, it initially seems to be an uneasy fit. But as Biddy's past resurfaces and Quincy faces a harrowing experience that no one should have to go through alone, the two of them realize that they might have more in common than they thought -- and more important, that they might be able to help each other move forward. Hard-hitting and compassionate, Girls Like Us is a story about growing up in a world that can be cruel, and finding the strength -- and the support -- to carry on.
For over 25 years, Thomas G. West has been a leading advocate for the importance of visual thinking, visual technologies and the creative potential of individuals with dyslexia and other learning differences. In this new book, he investigates how different kinds of brains and different ways of thinking can help to make discoveries and solve problems in innovative and unexpected ways. West focuses on what he has learned over the years from a group of extraordinarily creative, intelligent, and interesting people -- those with dyslexia, Asperger's syndrome, and other different ways of thinking, learning, and working. He shows that such people can provide important insights missed by experts as they also can prevent institutional "group think." Based on first-person accounts, West tells stories that include a dyslexic paleontologist in Montana, a special effects tech who worked for Pink Floyd and Kiss and who is now an advocate for those with Asperger's syndrome, a group of dyslexic master code breakers in a British electronic intelligence organization, a Colorado livestock handling expert who has become a forceful advocate for those with autism and a family of dyslexics and visual thinkers in Britain that includes four winners of the Nobel Prize in Physics. He also discusses persistent controversies and the unfolding science. This is an inspiring book that not only documents the achievements of people with various learning differences, but reveals their great potential -- especially in a new digital age where traditional clerical and academic skills are less and less important while an ability to think in pictures and to understand patterns using high-level computer information visualizations is rapidly increasing in value in the global economic marketplace.
Sharing the personal stories of individuals with disabilities who describe both the challenges and successes of their time in higher education, and with a major section on the findings of broad ranging research into the experiences of such students, the book explores the current situation, what works, and how things can be improved. "You are not college material" or "you don't belong in college" are comments frequently heard by students with disabilities. Despite this, college education is now an expected part of the transition to adulthood for many individuals with disabilities. The book includes practical advice to encourage self-advocacy in students with disabilities, and to support the professionals who are facing the challenges alongside them. Covering cerebral palsy, autism spectrum disorders, intellectual disabilities, and much more, this is vital reading for parents, individuals with disabilities, school teachers, college professors, and professionals working with adults with disabilities.
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